H.R. 5115 · 115th Congress
RARE Act of 2018
- Stage
- In committee
- Sponsor
- André Carson
- Introduced
- 2018-02-27
- Latest action
- 2018-03-02 · Referred to the Subcommittee on Health.
Summary
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018
This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.
The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.