H.R. 321 · 116th Congress
Neuromyelitis Optica Consortium Act
- Stage
- In committee
- Sponsor
- Barbara Lee
- Introduced
- 2019-01-08
- Latest action
- 2019-01-25 · Referred to the Subcommittee on Health.
Summary
Neuromyelitis Optica Consortium Act
This bill requires the National Institutes of Health to establish, administer, and coordinate a national consortium on neuromyelitis optica (NMO), which is a neurological disease that can cause blindness and paralysis.
The consortium must
award grants for research on the causes of, and the risk factors and biomarkers associated with, NMO; assemble a panel of experts to provide guidance and recommendations on research design and protocols; and designate a central laboratory to collect and analyze data from this research and to make the data and analysis available to researchers.